7 Days....

We have the date. Ben's surgery is in 7 days.

The weekend was painfully slow and today has been a never ending stream of faces. Most of the information was information we have heard before...and the normal interruptions for vital checks and feedings.

Dr Hong was in and took some pictures of Ben to get ready for next Monday. It's really happening. In 7 days Ben starts his journey. I can't even imagine what he is going to go through or how scary it must be when you are that small and don't really know what is going on and why everything is happening. To see him be able to breathe comfortably and not struggle will be so wonderful, it is just everything between now and then will be hard.

I think both Ashley and I are running on empty. This has been emotionally, physically, psychologically and financially draining. I can't help but wonder how we will find the strength to keep going and provide Ben with the support he needs, but we always do. Perhaps it is better not to question where it comes from and just be glad we find it from somewhere.

T - 7 days.....7 long days....