Monday, January 21, 2013

An update of sorts......

Poor Ben is still in th or...I'm still waiting and going out of my mind....

Wednesday, January 16, 2013

Best Friends.

The boys playing in Nanny's big chair. Poor Harry is having a bad hair day...







Monday, January 14, 2013

Sunday, January 13, 2013

Great story!!! Grandma says...

Grandmother Says...
Carrots, Eggs, or Coffee; "Which are you?" 

A young woman went to her grandmother and told her about her life and how things were so hard for her. She did not know how she was going to make it and wanted to give up. She was tired of fighting and struggling. It seemed as one problem was solved a new one arose.

Her grandmother took her to the kitchen. She filled three pots with water. In the first, she placed carrots, in the second she placed eggs and the last she placed ground coffee beans. She let them sit and boil without saying a word.

In about twenty minutes she turned off the burners. She fished the carrots out and placed them in a bowl. She pulled the eggs out and placed them in a bowl. Then she ladled the coffee out and placed it in a bowl. Turning to her granddaughter, she asked, "Tell me what do you see?"

"Carrots, eggs, and coffee," she replied.

She brought her closer and asked her to feel the carrots. She did and noted that they got soft.She then asked her to take an egg and break it.

After pulling off the shell, she observed the hard-boiled egg.

Finally, she asked her to sip the coffee. The granddaughter smiled, as she tasted its rich aroma. The granddaughter then asked. "What's the point,grandmother?"

Her grandmother explained that each of these objects had faced the same adversity--boiling water--but each reacted differently.

The carrot went in strong, hard and unrelenting. However after being subjected to the boiling water, it softened and became weak. The egg had begun fragile. Its thin outer shell had protected its liquid interior. But, after sitting through the boiling water, its inside became hardened.

The ground coffee beans were unique, however. After they were in the boiling water they had changed the water.

"Which are you?" she asked her granddaughter.

"When adversity knocks on your door, how do you respond? Are you a carrot, an egg, or a coffee bean?"

Think of this: Which am I?

Am I the carrot that seems strong, but with pain and adversity, do I wilt and become soft and lose my strength?

Am I the egg that starts with a malleable heart, but changes with the heat? Did I have a fluid spirit, but after a death, a breakup, a financial hardship or some other trial, have I become hardened and stiff?

Does my shell look the same, but on the inside am I bitter and tough with a stiff spirit and a hardened heart?

Or am I like the coffee bean? The bean actually changes the hot water, the very circumstance that brings the pain. When the water gets hot, it releases the fragrance and flavor. If you are like the bean, when things are at their worst, you get better and change the situation around you.

When the hours are the darkest and trials are their greatest do you elevate to another level?

AUTHOR UNKNOWN

Saturday, January 12, 2013

Friday, January 11, 2013

Wednesday, January 9, 2013

Sunday, January 6, 2013

The $0.99 Gingerbread house

We picked up a gingerbread house kit on clearance at the supermarket the other day. Since it was snowy and we were at Nanny's (where the kit was) we decided to give it a go.

Harry Helping Sissy


Mmmmmm Candy



 Working on the roof



Sneaking a Smartie when he didn't think anyone was looking!



Harrison and Victoria



The roof


Working Hard



Victoria 1



 Victoria 2



Victoria 3


Happy Benny Bean 


Slightly less happy Benny Bean


I asked him what was wrong and he pointed to his ear...poor boy :(


Saturday, January 5, 2013

Thursday, January 3, 2013

Perhaps I should place a self imposed Google Ban

Google is not my friend. Let me explain.

Yesterday I spent a very long time on the phone to the IWK trying to arrange all the preoperative appointments Benny Bean needs to have. This long string of phone calls really put me on edge.

It is hard to explain but when someone reinforces statistics as to why your child will find an upcoming procedure difficult you tend to dwell on it. It is all in the spin I suppose. I mean if they were more a bit more "Breathing problems in children with Pierre Robin are more common after palate surgery, but the incidence is still very low. I am sure it will be fine but we will do X,Y and Z to minimize any risk of something happening."  I think I would have became less anxious. Instead the conversation was more "It is very important you have Ben see the anesthesiologist again before surgery to determine his readiness for surgery. You do realize that even though he airway has been corrected he is at a higher risk than the general population for complications?!"

Yes as a matter a fact I do know this. However the way you said it is now making me panic a bit about it. Then introduce Google. I found some great research articles, but all confirmed increased complications in syndrome kids. Top of the list...Pierre Robin! It doesn't help to know he will be having several other procedures at the same time. To compound insult to injury the "lovely" woman who called me proceeded to tell me "While you will be admitted for 3-10 days be prepared for the next 3 weeks to be very bumpy and unpleasant." Why thank you! That makes me feel SOOOOOOO much better. Seriously, some people just need to learn to speak to other people.

Will he be okay? YES. Will I lose my sanity before all this is over? More than likely. Only 17 more days until preadmission and 18 days until surgery. I cannot wait for this to be over.

Tuesday, January 1, 2013