Showing posts with label Christmas. Show all posts
Showing posts with label Christmas. Show all posts
Monday, December 1, 2014
Sunday, December 25, 2011
Saturday, December 24, 2011
Day Dream?
I think I must be dreaming....we are getting a 30 hour pass to go home for Christmas!!!
Ashley packed...I got myself and Ben ready...we went to the NICU and had the nurse check Ben and the straps in his car bed.
Ashley took a load of things to the van...and then we left. I kept thinking someone was going to stop us. We went through both set of NICU locked doors and no one did. We made it to the elevator, then the lobby. We handed in the registration of live birth form and got in the van.
While we were driving away, I watched the hospital fade from view. No one stopped us. We were really going home...even if only for 30 hours. We were going to have Ben, Harrison and Victoria all in one place for the first time. No doctors, no nurses, no alarms, no monitors...I get to sleep in my own bed tonight and have a shower in my own bathroom with a towel that smells like fabric softener not "hospital". Suddenly the fact I didn't get all the shopping done I had wanted to didn't matter, the fact nothing is wrapped and under the tree doesn't matter, nor does it matter the BIG family dinner at my place isn't going to happen tonight. All that matters is we are all going to be home.
I keep expecting this to be a dream and wake up in the room that is always dark no matter what time of day. If this isn't a dream I am going to get what I really wanted for Christmas, my husband, my kids and myself all at HOME for Christmas.
Ashley packed...I got myself and Ben ready...we went to the NICU and had the nurse check Ben and the straps in his car bed.
Ashley took a load of things to the van...and then we left. I kept thinking someone was going to stop us. We went through both set of NICU locked doors and no one did. We made it to the elevator, then the lobby. We handed in the registration of live birth form and got in the van.
While we were driving away, I watched the hospital fade from view. No one stopped us. We were really going home...even if only for 30 hours. We were going to have Ben, Harrison and Victoria all in one place for the first time. No doctors, no nurses, no alarms, no monitors...I get to sleep in my own bed tonight and have a shower in my own bathroom with a towel that smells like fabric softener not "hospital". Suddenly the fact I didn't get all the shopping done I had wanted to didn't matter, the fact nothing is wrapped and under the tree doesn't matter, nor does it matter the BIG family dinner at my place isn't going to happen tonight. All that matters is we are all going to be home.
I keep expecting this to be a dream and wake up in the room that is always dark no matter what time of day. If this isn't a dream I am going to get what I really wanted for Christmas, my husband, my kids and myself all at HOME for Christmas.
Christmas Eve NICU Shoutout
This morning Ben was taken down to the NICU for his morning checks. I left him there for a little bit so Ashley and I could sort some things out. When I came back Ben's nurse, Shyla, had written on Ben's shoutout board that was above his cot/bill bed.
This was so cute and made me smile...especially the fact his weight was up 20g!!
Friday, December 23, 2011
Presents

Today was the day of the present.
First the lovely social worker that has been helping to organise accommodation for us and putting us in touch with resources to help us cope came to see us. She took Ashley and I to a Christmas tree that had loads of toys underneath. We were able to pick something for Harrison and Victoria to give them for Christmas from the NICU staff. We were in shock. These people go above and beyond to help restore some normal to the lives of the people that come and go through the NICU doors. I can't say enough good about them.
Afterwards Ashley and I were paid a visit by the genetic counselor. I was a bit worried. The results weren't expected in that quickly and being really the last day of work before the Christmas holiday my mind went to a pretty dark place. However I was pleasantly surprised when she told us that Ben's results were essentially normal. One portion of the test won't be back for a few months but there is no reason to believe it would be abnormal at all. It truly looks like Ben's Pierre Robin Sequence is an isolated event. This truly was the best Christmas gift we could get!!!
We decided that we really needed to finish off the shopping for the other kids for Christmas and we left Ben for a very short time in the NICU nursery so we could get the rest of the presents. It truly is starting to feel a little bit like Christmas.
Labels:
Christmas,
Pierre Robin,
Pierre Robin Sequence,
Presents
Saturday, December 25, 2010
Saturday, December 18, 2010
Chinese Tea-Cadance Nutcracker 2010
For all of those of you who missed the show a few weeks ago here is a video of Victoria preforming in the Nutcracker! She is in the red costume with the yellow umbrella (although that is pretty obvious!) I apologise that the beginning is cut off...my battery was low and I wanted to get all of Victoria's part in the video. Basically all you miss is Drosselmeyer coming on stage with one of the umbrella's and gives it to Clara and the Nutcracker. He then leaves and the Chinese dancers enter....
It was a fantastic show! Great job Victoria.
It was a fantastic show! Great job Victoria.
Thursday, December 9, 2010
Tuesday, November 30, 2010
Saturday, November 27, 2010
Nutcracker Tickets
Just a friendly reminder that Victoria is dancing next weekend at the Atlantic Theater Festival in the Nutcracker. Tickets are available now for all 3 shows. Just give me a call or call the Acadia box office.
Wednesday, December 17, 2008
Friday, December 12, 2008
Wednesday, December 3, 2008
Christmas Countdown Day Three
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