Finally!

Well he is finally out! What was supposed to only be 70 minutes turned into 3.5 hours!!!!!

GI said things looked okay but his stomach was raw and she still suspects EoE in addition to FPIES.  We will have to hold off on any new food trials as he may be reacting to something we are currently considering safe. We will have to wait for the results of the biopsies to find out if he has EoE and to see if we can determine why his labs are out of wack and he is so anemic.

Dentistry was considered a HUGE success. His malformed tooth was able to be saved. It was built up and capped to protect the area that came in without enamel. 

Ben is not very comfy but we hope to be going home soon. 

Thanks for the thoughts and prayers!

Surgery Day again...

Well here we go again. I must admit this is not something I ever feel prepared for. This time has really sucked. Ben had to stop all solids and go on clear liquids only for 24 hours. Upper and lower GI scopes and depending on how bad his malformed tooth actually is either a repair or removal.

I am sure in theory that sounds okay. With Ben's FPIES he cannot have ANY meat or we have a vomit to shock reaction. So no Chicken broth. No Jello (or anything else containing gelatin). So we were pretty limited in what we could give him. Water seemed to be the only thing he would take any of. He also had to stop his medications before surgery this time. That did not go well.

About an hour after arriving at the IWK his reflux was acting up and he was feeling pretty sick. He ended up throwing up twice before surgery. 

We have met with anesthesia, GI and dentistry and we are all ready to go...I think... 

FPIES Awareness Day

Consults, Emergency Room and Stitches

After months of waiting we finally had a consult with the GI doctor about Ben's vomiting episodes. He is pretty sure it is something called FPIES and wants us to follow up with Dr. Kapur next week at Halifax allergy and asthma.

We weren't back 10 minutes and Ben tripped and fell over something in my dad's building and we landed in Emergency.

We waited forever! In the end the doctors decided to do stitches as opposed to glue since the cut was vertical. The doctors gave him sedation so he would stay still and he ended up having apnea episodes. So long story short we had respiratory in with us and he was put on oxygen.

Several hours and six stitches later we FINALLY got to come home.

Poor Bean can't catch a break. :(