Benjamin Alvin Floyd~ Our Pierre Robin Sequence Story

Benjamin Alvin Floyd arrived at 0037 Thursday December 15 2011. He was perfect, 8 pounds 12 ounces, term and a head of hair to die for! But something wasn't quite right. You could tell within a few minutes he was struggling to breathe. He was turning blue and looked so small. That's when everything changed.

Ben was taken to the warmer and the nurses and Ashley started trying to help him however they could. Paediatrics, and Respiratory came in. They managed to get his airway opened and whisked him to the nursery to be looked after. All I could do was watch. It was the worst feeling. Xray saw him too and then Ben was airlifted to the IWK hospital for sick children in Halifax and Ashley and I were transferred by ground.

The next 24 hours were almost incomprehensible. We were able to see Ben for a few minutes in the NICU once the nurses and doctors had him settled. We were told to get some rest but that seemed impossible. We met with doctors from what seemed liked everywhere. Plastics, Genetics, Pediatrics and ENTs. We were told that Ben had some thing called Pierre Robin Sequence and that the prognosis was dependent on if it was an isolated event or part of a bigger problem or syndrome.

For the moment we are in NICU 1 which is a pretty overwhelming place. We are trying to take things one day at a time but knowing that some of the testing will take weeks or months to come back seems unreal.

I will try to update as best I can but life in the NICU is overwhelming...I am posting some pictures of Ben and I in the NICU a few hours after we arrived.