Harrison on an airplane...

As drawn/coloured  by Harrison age 4.

No news is good news?

We still haven't heard the results of the biopsies Ben had a litttle over a week ago. I have had a couple missed calls from the IWK but so far I haven't been able to get a hold of anyone with any information.

The food trial for this week has been cancelled but we are still going to be seen by allergy/asthma and immunology.

The above is another picture from before the scopes. He LOVES the fish!

Remember

Finally!

Well he is finally out! What was supposed to only be 70 minutes turned into 3.5 hours!!!!!

GI said things looked okay but his stomach was raw and she still suspects EoE in addition to FPIES.  We will have to hold off on any new food trials as he may be reacting to something we are currently considering safe. We will have to wait for the results of the biopsies to find out if he has EoE and to see if we can determine why his labs are out of wack and he is so anemic.

Dentistry was considered a HUGE success. His malformed tooth was able to be saved. It was built up and capped to protect the area that came in without enamel. 

Ben is not very comfy but we hope to be going home soon. 

Thanks for the thoughts and prayers!

Surgery Day again...

Well here we go again. I must admit this is not something I ever feel prepared for. This time has really sucked. Ben had to stop all solids and go on clear liquids only for 24 hours. Upper and lower GI scopes and depending on how bad his malformed tooth actually is either a repair or removal.

I am sure in theory that sounds okay. With Ben's FPIES he cannot have ANY meat or we have a vomit to shock reaction. So no Chicken broth. No Jello (or anything else containing gelatin). So we were pretty limited in what we could give him. Water seemed to be the only thing he would take any of. He also had to stop his medications before surgery this time. That did not go well.

About an hour after arriving at the IWK his reflux was acting up and he was feeling pretty sick. He ended up throwing up twice before surgery. 

We have met with anesthesia, GI and dentistry and we are all ready to go...I think...