Harry's First Tricycle

Today I dug out Victoria's old tricycle and helmet for Harrison. He loves it!!

He also loves Victoria's old pink helmet lol.

Brother and Sister

Great Job Victoria!!!

Congratulations to Victoria!! She graded and will be in Mr. Collins grade 5 class in September!

She also had the best report card!!! Almost all A's, just 2 B's!! Great Job Tori!!! We are proud of you.

In 20 Years From Now....

Victoria will be in Barbados driving a Ford Focus....according to this random paper I found while cleaning out her school bag. Too cute!

I hope she has room in her Focus for Mum!

Victoria in Barbados

Tori hanging out in front of Bert's this past February during her trip to Barbados with Pampie and Nanny.

Hey Look At Me GO!!

Harrison Builds a Tower....

and then knocks it down!

Apparently he finds this HILARIOUS!

Random Harrison

A random video for daddy of Harrison running around Nanny and Pampie's yard in the rain.

Ben taking it easy....

HEY!!!

How'd you get a drink?????

The Calm Before the Storm?

Today was a confusing, yet happy day. We had several follow up appointments at the IWK. We saw plastics, ENT, and ID to name but a few.

The doctors are very pleased with Ben's progress. His weight has FINALLY hit the 15 percentile!!! This is great news as this means we don't need weight checks every two days!!! Woohoo!!!

The next few months should ( I can emphasize the world SHOULD) be fairly quiet. Then we start the next rounds of surgery.

Ben will start with at least one scar revision with plastics. He will also need another follow up bronchoscopy. Then around his first birthday/Christmas we will have his palate repair and any remaining scar revision surgery as well as tubes in his ears.

We go back in 2-3 months to start the preop work up for the surgeries.

Fingers crossed the summer is quiet and we can enjoy some quiet time together.

Harry Monster

 Harrison decided on a brand new pair of blue "monster" rain boots....he and his sister found this rain coat to match and he HAD to have it!!!

Harrison models his new coat and boots!

Dancing Queen

Return To Blogging

The past month has been horrid. I ended up taking a break from blogging as I just couldn't relive everything all over again.

We ended up being admitted to the IWK 5 weeks in total. The first week was on observation and to figure out what was up with Benjamin. By the end of the first week it was clear he had osteomylitis of his jaw. As from our previous post they attempted discharge and home care but that didn't work so the remaining 4 weeks were spent in hospital on IV medications.

I ended up having Harrison with me for the last 3 and a half weeks once a bigger room was available. It was fantastic having him there but it is hard enough to be in hospital with one child let alone a second who doesn't need to be there and doesn't really get what is going on.

We were finally discharged last Saturday on just his reflux medications. The ID doctors don't feel oral antibiotics will do much/if anything at all.

As of right now we are being seen 4 times a week by someone (either the family doctor or pediatric doctor here or one of the MANY clinics in the city) and having weekly labs done to follow his inflammation markers. Should ANYTHING show up at anytime it means readmission for at least another 4 weeks of treatment. *SIGH*

So that's where we are at. The boys both have immunizations at the end of the week so as always the overwhelming stream of visits continues....